Friday, July 11, 2014

Overall a pretty darn good day

Thanks to all who have prayed, visited, brought food, cared, emailed, texted, called, and loved us.  All in all, yesterday was a pretty darn good day.  It was so good, in fact, that I haven't had a chance to give any updates.

The scoop:

  • Maggie was awake a good portion of the day, alert and doing pretty well.
  • She tolerated therapy (speech, physical, and occupational) over the course of a couple of hours.
  • She ate well.
  • Her left eye seemed to be tracking more consistently.  Still a little fuzzy on the right one, it seems.
  • She took a really good nap late yesterday afternoon.  That involved me asking the nurse for a Do Not Disturb sign on the door.  No.  Really.  True story.
  • Her sodium levels have remained steady via the oral sodium doses throughout yesterday.  This means no IV fluids.  Yay!
  • She can eat basically whatever she wants and drink whatever she wants.
  • Yesterday evening, she was using her left arm a little bit - specifically resisting me when I was working with her.  She also fired her left quad and, in addition, lifted her whole left leg off the couch.  Those are both new milestones.
  • She just seems more content.

Prayer Requests:

  • As usual, a clear diagnosis.  Hematology ruled out the blood-clotting factors.  That was good news today...and still leaves us without a diagnosis.
  • Continued healing for her left side and right field of vision.
  • No heart abnormalities.  These PVC things pop up that can scare some parents of a heart baby.
  • No more "incidents," "insults," or "events."  I'm pretty sure I now hate all those words that medical professionals use to describe the life-changing experience we are living.
  • Steady levels for all the stuff they need:  sodium, potassium, and the rest of the periodic table they keep tabs on.
  • And one that qualifies as "wouldn't it be awesome" - I have been scheduled for 18+ months to speak at Pine Cove's Family Camp in a few weeks.  I know that Maggie has some inpatient rehab ahead of her.  But the Queen and I were talking about how awesome it would be to be able to get out and have a week to recoup, ALL 6 OF US.  We love Pine Cove and giving back to them, and this week could be a ministry to us as well.

Hope has an amazing ability to bring resolve and a sense of capacity.  We have had a heaping teaspoon of hope over the past couple of days.  I think the Queen and I both have a sense of resolve that we're going to get through this and a sense of capacity that God will give us what we need.

May it be, or...Amen.

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