- Maggie was awake a good portion of the day, alert and doing pretty well.
- She tolerated therapy (speech, physical, and occupational) over the course of a couple of hours.
- She ate well.
- Her left eye seemed to be tracking more consistently. Still a little fuzzy on the right one, it seems.
- She took a really good nap late yesterday afternoon. That involved me asking the nurse for a Do Not Disturb sign on the door. No. Really. True story.
- Her sodium levels have remained steady via the oral sodium doses throughout yesterday. This means no IV fluids. Yay!
- She can eat basically whatever she wants and drink whatever she wants.
- Yesterday evening, she was using her left arm a little bit - specifically resisting me when I was working with her. She also fired her left quad and, in addition, lifted her whole left leg off the couch. Those are both new milestones.
- She just seems more content.
- As usual, a clear diagnosis. Hematology ruled out the blood-clotting factors. That was good news today...and still leaves us without a diagnosis.
- Continued healing for her left side and right field of vision.
- No heart abnormalities. These PVC things pop up that can scare some parents of a heart baby.
- No more "incidents," "insults," or "events." I'm pretty sure I now hate all those words that medical professionals use to describe the life-changing experience we are living.
- Steady levels for all the stuff they need: sodium, potassium, and the rest of the periodic table they keep tabs on.
- And one that qualifies as "wouldn't it be awesome" - I have been scheduled for 18+ months to speak at Pine Cove's Family Camp in a few weeks. I know that Maggie has some inpatient rehab ahead of her. But the Queen and I were talking about how awesome it would be to be able to get out and have a week to recoup, ALL 6 OF US. We love Pine Cove and giving back to them, and this week could be a ministry to us as well.
Hope has an amazing ability to bring resolve and a sense of capacity. We have had a heaping teaspoon of hope over the past couple of days. I think the Queen and I both have a sense of resolve that we're going to get through this and a sense of capacity that God will give us what we need.
May it be, or...Amen.