We have entered into our 7th week of time here at the fine institution of Texas Children's Hospital. I really was told it was just going to be "a day or two" back in early November. Those seem like far away words from a far away time.
Good stuff happening:
1. Her chest drainage appears to be down along with a positive x-ray yesterday (Sunday morning). Those are two markers we keep an eye on.
2. She is her same bossy, demanding, center-of-attention self.
3. We have on the radar a downgrade in her diuretic treatment (going from IV to oral). All this assumes we keep going in the right direction - see below.
4. Cousins came to see her yesterday and apparently had quite the Frozen karaoke moment. That video may come back to haunt them on their wedding days...
5. She got to see her older brother on Sunday and may get to see the Wonder Twins this week if they lift the visitation restrictions.
6. They have eased her fluid restriction by 100ml. That makes a girl happier because she can drink (even a little bit) more.
7. Our friends adopting in Nicaragua have completed their journey. A few forms at the US Embassy and they are homeward bound. That has nothing to do with us but Maggie is a big part of their adoption story - and it's good to talk about events occurring outside the hospital room. Especially happy ones.
Points to pray on:
1. As of Sunday night, the Queen expressed some concern about her O2 saturation and some fear about Monday morning's x-ray. You can pray both are fine.
2. No steps backward. Only forward progress, please. The roll-out of IV-turned-oral-turned-reduced dosages is a long road. And the longer we're on it, the harder it is on the rest of her systems.
3. More Kingdom-related moments in the hospital.
4. Everyone would get to be together at Christmas like we were at Thanksgiving (even for a few brief hours).
5. The Big Three would continue to hang in there, know they are loved, and somehow feel secure in the midst of the world-rocking pattern we live right now.
I woke up Sunday morning trying to spark faith by reminding myself that Jesus reigns over everything and so it'll all be okay in the end. I believe it to be so. Sometimes more than others.
Thanks for staying with us. We cannot say thanks enough.
This is the picture of her in the van on Gotcha Day. From that point forward, I am forever smitten. I'm her dad. What can I say?