Saturday, November 21, 2015

So, it's been two weeks...

We’ve been here two long weeks.  I don’t say that to gripe but to give it perspective, because two weeks has felt like a LOT for this unexpected, replan-the-holiday, keep-a-three-year-old-busy kind of stay.

I came up with another way of measuring this:  we have been in the hospital more than out since her surgery.  4 weeks in post-op, out 4 weeks, 2 weeks back in.  In case you’re keeping score at home, that’s 6 out of the past 10 weeks.

People ask how it is and my response typically is, “It’s a grind.”  And without the support of many and the prayers of many more, we would long ago have cratered.  So thanks.  Even yesterday morning, two friends dropped by during the brief time I had in the office and took time to pray.  I told them afterward how much I appreciated them and went to hug them, resulting in what was possibly the most awkward three-way-man-hug ever.  But hey, I was grateful.

Here is our current status:

She continues to drain from her chest tube.  We work hard throughout the day to keep it from kinking and twisting.  It appears to me that when we keep it untwisted and unkinked, the drainage is down a little more each day.  But then again I might be living in Half-Full Land.

Her spirits are good.  Outside of the tube and bubbling box, you wouldn’t know she’s sick.  On the outside, she looks great.  It’s what’s going on inside that is messy.  There’s a spiritual application there.

We’ve switched from IV to oral diuretics.  That’s one step closer to us getting home.  We have to keep the drainage going down while on the oral meds to stay on the right path. 

There’s been more talk about more surgical procedures but we’re trying to push them off as far away as possible on that stuff.  The Queen actually had that conversation yesterday.  Our favorite doc up here (who saved Maggie’s life two summers ago) told us to be sure and be patient.  We’re being patient.  Home is not better if there are more and painful surgical procedures that get us there.

By all accounts, we’re here through the Thanksgiving holiday.  That ought to be interesting.  And a good exercise for us, as a family, to find things to be thankful for while sitting where we’ll be sitting.

If you’re the praying type, here are ways you can hold us up…

She would continue to improve and we would have exactly zero steps backward.  All the medical stuff they’re trying needs to work.

She would continue to be able to find joy in the 250 sq.ft. that we are occupying.

The Big Three would hang in there.  Signs of strain are already present. 

Thank you.

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